One of the difficulties we face with Calvin is that he has somewhat of an orphan disease. I've never met anyone with the same diagnoses as him. I am sure that in the special needs world as with the typical kids world, no too kids are alike.
However, when dealing with problems it is helpful to have a community to draw support from and so that insurance will acknowledge the need for services and pay for them. This is where we are flailing. Insurance will not cover ABA, we applied to the regional center and they will not accept Calvin, even though the need for services (such as ABA therapy, respite care) is apparent. The neuropsyciatrist we see is not covered by insurance. I called insurance to ask them to provide another similar doctor and they don't have one in san Diego but still refuse to pay for me to see the type of doctor we need.
I was so grumpy over these losses that I have not really considered where to go next and took a couple of months of vacation in thinking about these issues. Now, I'm back in the game and ready to move forward.
We got a great offer from one of the ABA agencies in San Diego for an out of pocket payment (still hurts though) for some ABA services. We're going to start that up pretty soon.
Regional center will have to wait and luckily we don't see the psychiatrist as often as we used to so even that cost is significantly reduced.
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