Wednesday, March 12, 2014

blessed

We had our follow up with neurology today. We love our neurologist. If you have epilepsy and live in San Diego you must see Dr. Nespeca. He is worth the wait.  He is quite possibly my favorite dr. that we see for anyone in the family.

Calvin hasn't had any seizures since he was initially diagnosed with epilepsy a year and half ago. We have not advanced the dose of epilepsy medication for 9 months and yet Calvin has remained seizure free. This is pretty amazing considering the abnormality in his brain as seen on the MRI.  We are blessed to have been seizure free for so long. We will continue on this same dose until Calvin does have a seizure and then move the dose forward  at that time.




Tuesday, March 11, 2014

progress

Today we had Calvin's annual IEP. I was blown away by one section which reported the progress we have seen since Calvin started at cook education center 2 years ago.

"during a 49 day period prior to 3/21/12 Calvin engaged in hitting 136 times, throwing 174 times, disrupting others by making noises 275 times, property destruction 23 times, defiance 70% of the time and attempted urination in the classroom 4 times."

WOWZERS! Life was crazy.

"Calvin has had 2 incidents of problem behavior since the beginning of the 2013-2014 school year"

This is AMAZING. This school has blessed our life so much.  We have only been there 2 years and I had not realized how much progress we have made. We still have much progress to make before Calvin would be ready for a less restrictive environment, but it is so great that he is a "model student" in his current setting.

Other thoughts....either we are super blessed that he has come to this point so that we are in a position to move him to a new school in Houston OR we are crazy to even think about making a change when we've come so far and have so far to fall.  I am trying to move forward with faith that it is the former.

Now that our IEP is up to date we are ready for the next steps in our process.  First, I can fax it to a couple of Houston school districts and see what placement they would recommend for Calvin and then we can go to Houston and see the schools that are a possibility for us. Once again, I'm hoping things look good and we can have a smooth transition to a great new school that will be just right for Calvin.